In 2007, fourteen-month-old Ava was diagnosed with Morquio Syndrome, a rare, progressive, genetic disorder for which there was no treatment. The jarring news left her mother Tammy reeling and wondering what the future held for her daughter. As the days following the diagnosis blurred together, Tammy saw two paths before her—fall apart or fall into the arms of the Lord. For a time, she did both, struggling with her emotions one moment, feeling God’s peace the next, all while continuing to care for her young family. Slowly, through near-constant prayer and Bible study, her burgeoning faith grew stronger than her fear and distress, leading her to a path she hadn’t seen—one that would test her even more and offer help for Ava.
In She is My Child, Tammy Coulter shares her spiritual journey, alongside Ava’s physical one, from diagnosis to surgeries to a long-anticipated Morquio clinical trial that had them flying to Chicago every week for more than two years. She reveals the most difficult moments and the greatest victories, as well as the humorous situations she and her daughter so often encountered, while highlighting God’s provision and what He taught her along the way.